Pick Your Community: | Hopkins | Muhlenberg | Daviess | Christian | Henderson | Lakes | McCracken | Webster
Davis Motor Sales banner ad

Kasen’s Krusade: Family Seeking Help with Baby's Medical Expenses

kasen 300CADIZ, Ky. (11/29/13) – Kasen Paul Creed is a 5-month-old boy, who was born with a small nonfunctioning gall bladder and was diagnosed with a rare liver disease called Biliary Atresia.

BA, is a life-threatening condition in infants in which bile ducts inside or outside the liver do not have normal openings.

“He was 4 days old when I noticed something with his eyes and he looked as yellow as a bottle of mustard,” said Taylor Creed, mother of Kasen. “I felt like something was wrong but nobody believed me. Everyone kept telling me everything was normal and by looking at him, he looks like a healthy little boy.”

After Kasen turned 7 weeks, his family really began to notice some serious behaviors that didn’t seem normal for a baby his age. BA causes liver damage, scarring, loss of liver tissue and cirrhosis.

“He was sleeping more than a normal baby should. He wasn’t being active during the times he should have been either. He would eat and go right back to sleep,” said Creed. “So, I took him to the doctor. When Dr. Foster got the results back, she noticed that his salt, protein and liver enzymes sky had rocketed. So, she sent me to Vanderbilt in Nashville.”

When the emergency room doctors at Vanderbilt did further testing, they found out during an ultrasound that he did not have a functioning gall bladder and required surgery. At 58 days old, Kasen underwent a procedure called Kasai.

“When he went in for his surgery, they took out the piece of gall bladder and split one of his intestines and hooked it to his liver so bile had a place to drain instead of floating around in his belly,” said Creed. “We are waiting now to see if his surgery worked.”

Normally, patients who have BA have up to three or four Cholangitis infections within their first year, but spread out, not back to back like Kasen has undergone.

 “After they did another ultra sound, they found he had Cholangitis for the fourth time,” said Creed. “So, then they decided to increase his Cipro antibiotic in hopes it would help get rid of the infection.”

The first major sign of Biliary Atresia includes jaundice – where both skin and whites of eyes turn yellow. Jaundice occurs when the liver isn’t able to remove the bilirubin and instead is absorbed by the liver, then processed and released into bile. Then the blockage of the bile ducts forces bilirubin to build up in the blood. Other signs include dark urine, gray or white stools, and slow weight gain and growth.

“When you have a normal liver, it has a duct at the end where it closes,” said Cathy Bush Cravens, Kasen's grandmother. “When the bile pushes through, once it goes into the gall bladder and the intestines, the duct closes off so no bacterium enters the liver. So, with his duct not being there, there wasn’t anything to push through and was backing up and coming out his small duct. His ducts still do not close and bacteria free flows.”

A liver transplant is a definitive treatment for those with BA and the survival rate after surgery has increased over the years. Infants with BA are more likely to need a liver transplant. The extent of damage to the liver prior to the transplant determines how soon an infant would need the transplant.

“He’s eventually going to have to have a transplant,” said Cravens. “The goal is to get him to 3 years old before he has to have one. And, the other day at his appointment, the doctors were looking for bile lakes. If those small ducts close off completely, what will happen is the bile will start pulling in the abdomen which would mean he would immediately go on a transplant list.”

Kasen currently takes multiple medications daily and requires specialy ordered formulas to help break down milk and proteins to be easily digested.

 “Kasen has been out of the hospital for a little over a month now,” said Creed. “This is the longest he’s gone. Before, he was going every other week.”

 Trouble viewing this gallery on your device? Click here for photos.

In August, Craves started a Facebook page solely dedicated to Kasen where people can follow his updates and send donations and prayers. A lot of Kasen’s medications are not covered on his insurance and must come out of pocket, which gets very expensive for his family.

The family relies a lot on donations to pay for these medications and to help pay for gas to and from Vanderbilt and parking. Frequently Kasen is hopsitalized for up to 10 days following a doctor's appointment.

Kasen's next scheduled appointment is Dec. 31.

For more information and updates on Kasen, visit https://www.facebook.com/kasenskrusade. Anyone interested in making a donation, may send checks to: Kasen Creed, c/o Planters Bank, P. O. Box 1570, Hopkinsville, KY, 42241-1570 or at any Planters Bank locations.

Amber Averitt
SurfKY News
Photos by Cathy Bush Cravens and Taylor Creed

© Copyright 2014 SurfKY News Group, Inc. All rights reserved. This material may not be published, broadcast, or rewritten without permission. SurfKY News encourages you to share this story by using one of the social media links below.

Posted on 2/2/14

Latest Video

Genovese - http://www.mchky.org/staff/bio.php?doc_id=35646&sub= Lewis - http://www.mchky.org/getpage.php?name=bracken_lewis Holt - http://www.mchky.org/getpage.php?name=drholt Napier - http://www.mchky.org/getpage.php?name=dr.napier_page Newman - http://www.mchky.org/staff/bio.php?doc_id=50353
Genovese - http://www.mchky.org/staff/bio.php?doc_id=35646&sub= Lewis - http://www.mchky.org/getpage.php?name=bracken_lewis Holt - http://www.mchky.org/getpage.php?name=drholt Napier - http://www.mchky.org/getpage.php?name=dr.napier_page Newman - http://www.mchky.org/staff/bio.php?doc_id=50353
2/6/2014 - posted
3/13 - 16
Started 11/8/2013
Started 11/8/2013

Stock Report

1 DOW 16,804.71
-238.19 (-1.40%)    
2 S&P 1,946.16
-26.13 (-1.32%)    
3 NASDAQ 4,422.08
-71.31 (-1.59%)    
Genovese - http://www.mchky.org/staff/bio.php?doc_id=35646&sub= Lewis - http://www.mchky.org/getpage.php?name=bracken_lewis Holt - http://www.mchky.org/getpage.php?name=drholt Napier - http://www.mchky.org/getpage.php?name=dr.napier_page Newman - http://www.mchky.org/staff/bio.php?doc_id=50353
Genovese - http://www.mchky.org/staff/bio.php?doc_id=35646&sub= Lewis - http://www.mchky.org/getpage.php?name=bracken_lewis Holt - http://www.mchky.org/getpage.php?name=drholt Napier - http://www.mchky.org/getpage.php?name=dr.napier_page Newman - http://www.mchky.org/staff/bio.php?doc_id=50353
2/6/2014 - posted
3/13 - 16
Started 11/8/2013
Started 11/8/2013
Genovese - http://www.mchky.org/staff/bio.php?doc_id=35646&sub= Lewis - http://www.mchky.org/getpage.php?name=bracken_lewis Holt - http://www.mchky.org/getpage.php?name=drholt Napier - http://www.mchky.org/getpage.php?name=dr.napier_page Newman - http://www.mchky.org/staff/bio.php?doc_id=50353
Genovese - http://www.mchky.org/staff/bio.php?doc_id=35646&sub= Lewis - http://www.mchky.org/getpage.php?name=bracken_lewis Holt - http://www.mchky.org/getpage.php?name=drholt Napier - http://www.mchky.org/getpage.php?name=dr.napier_page Newman - http://www.mchky.org/staff/bio.php?doc_id=50353
2/6/2014 - posted
3/13 - 16
Started 11/8/2013
Started 11/8/2013
Genovese - http://www.mchky.org/staff/bio.php?doc_id=35646&sub= Lewis - http://www.mchky.org/getpage.php?name=bracken_lewis Holt - http://www.mchky.org/getpage.php?name=drholt Napier - http://www.mchky.org/getpage.php?name=dr.napier_page Newman - http://www.mchky.org/staff/bio.php?doc_id=50353
Genovese - http://www.mchky.org/staff/bio.php?doc_id=35646&sub= Lewis - http://www.mchky.org/getpage.php?name=bracken_lewis Holt - http://www.mchky.org/getpage.php?name=drholt Napier - http://www.mchky.org/getpage.php?name=dr.napier_page Newman - http://www.mchky.org/staff/bio.php?doc_id=50353
2/6/2014 - posted
3/13 - 16
Started 11/8/2013
Started 11/8/2013

Most Read This Week (Site-Wide)

September 27, 2014 4021

Hopkins County Grand Jury Misdemeanor Indictments

in News by Karen McKnight
September 29, 2014 3616

Endless Road Strings Bring Orchestra Mix to…

in Top Stories by Paul McRee, SurfKY News
October 01, 2014 3235

Muhlenberg Community Hospital to Host Lighting of…

in Top Stories by Information provided by Erin Warren
September 27, 2014 3045

Sinister on Center Takes Haunted Manor to Whole…

in Top Stories by Charles W. Riley II, SurfKY News
September 29, 2014 2585

One Injured in Single-Vehicle Collision on…

in Top Stories by Rita Dukes Smith, SurfKY News Director
September 29, 2014 2469

Man, Woman Charged with Violating EPO Against…

in Top Stories by Madisonville Police Department
September 28, 2014 2466

Community Shows Support to Muhlenberg Humane…

in Top Stories by Charles W. Riley II, SurfKY News
September 28, 2014 2228

Marching Mustangs Take Third in Ohio Competition

in Top Stories by Information provided by Shawna Hendrix
September 29, 2014 2161

Man Charged with PI, Drugs, After Allegedly…

in Top Stories by Madisonville Police Department
September 27, 2014 1975

Hopkins/Webster Counties Native, Paducah Writer…

in Top Stories by Amber Averitt, SurfKY News
September 29, 2014 1964

Traffic Accident on Brown Road

in News by Madisonville Police Department

Most Read Stories from Hopkins County

September 29, 2014 2585

One Injured in Single-Vehicle Collision…

in Top Stories by Rita Dukes Smith, SurfKY News Director
September 29, 2014 2469

Man, Woman Charged with Violating EPO…

in Top Stories by Madisonville Police Department
September 29, 2014 2161

Man Charged with PI, Drugs, After…

in Top Stories by Madisonville Police Department
September 29, 2014 1619

Man Arrested for DUI, Marijuana Possession

in Top Stories by Madisonville Police Department
September 28, 2014 1435

Angel Garden Dedicated at Baptist…

in Top Stories by Tammy Holloway, SurfKY News

Most Read Stories from Muhlenberg County

September 29, 2014 3616

Endless Road Strings Bring Orchestra Mix…

in Top Stories by Paul McRee, SurfKY News
October 01, 2014 3235

Muhlenberg Community Hospital to Host…

in Top Stories by Information provided by Erin Warren
September 28, 2014 2466

Community Shows Support to Muhlenberg…

in Top Stories by Charles W. Riley II, SurfKY News
September 28, 2014 2228

Marching Mustangs Take Third in Ohio…

in Top Stories by Information provided by Shawna Hendrix
September 29, 2014 1694

Fourteen Year Old Parker Hastings Wins…

in Top Stories by Paul McRee, SurfKY News

SurfKY News Group, Inc. Central Office & Printing Division
1125 Nebo Rd.  •  Madisonville, KY 42431  •  270.452.2249 (fax)
Main Number: 270.452.2727 (phone)  •  Printing Division Direct Line: 270.821.8600 (phone)


Contact a member of our staff: www.surfky.com/contact
Copyright © 2014 SurfKY News Group, Inc.  •  Terms of Use  •  Site Map

social 03social 04social 22social 21social 06