Pick Your Community: | Hopkins | Muhlenberg | Daviess | Christian | Henderson | Lakes | McCracken | Webster
Davis Motor Sales banner ad

Kasen’s Krusade: Family Seeking Help with Baby's Medical Expenses

kasen 300CADIZ, Ky. (11/29/13) – Kasen Paul Creed is a 5-month-old boy, who was born with a small nonfunctioning gall bladder and was diagnosed with a rare liver disease called Biliary Atresia.

BA, is a life-threatening condition in infants in which bile ducts inside or outside the liver do not have normal openings.

“He was 4 days old when I noticed something with his eyes and he looked as yellow as a bottle of mustard,” said Taylor Creed, mother of Kasen. “I felt like something was wrong but nobody believed me. Everyone kept telling me everything was normal and by looking at him, he looks like a healthy little boy.”

After Kasen turned 7 weeks, his family really began to notice some serious behaviors that didn’t seem normal for a baby his age. BA causes liver damage, scarring, loss of liver tissue and cirrhosis.

“He was sleeping more than a normal baby should. He wasn’t being active during the times he should have been either. He would eat and go right back to sleep,” said Creed. “So, I took him to the doctor. When Dr. Foster got the results back, she noticed that his salt, protein and liver enzymes sky had rocketed. So, she sent me to Vanderbilt in Nashville.”

When the emergency room doctors at Vanderbilt did further testing, they found out during an ultrasound that he did not have a functioning gall bladder and required surgery. At 58 days old, Kasen underwent a procedure called Kasai.

“When he went in for his surgery, they took out the piece of gall bladder and split one of his intestines and hooked it to his liver so bile had a place to drain instead of floating around in his belly,” said Creed. “We are waiting now to see if his surgery worked.”

Normally, patients who have BA have up to three or four Cholangitis infections within their first year, but spread out, not back to back like Kasen has undergone.

 “After they did another ultra sound, they found he had Cholangitis for the fourth time,” said Creed. “So, then they decided to increase his Cipro antibiotic in hopes it would help get rid of the infection.”

The first major sign of Biliary Atresia includes jaundice – where both skin and whites of eyes turn yellow. Jaundice occurs when the liver isn’t able to remove the bilirubin and instead is absorbed by the liver, then processed and released into bile. Then the blockage of the bile ducts forces bilirubin to build up in the blood. Other signs include dark urine, gray or white stools, and slow weight gain and growth.

“When you have a normal liver, it has a duct at the end where it closes,” said Cathy Bush Cravens, Kasen's grandmother. “When the bile pushes through, once it goes into the gall bladder and the intestines, the duct closes off so no bacterium enters the liver. So, with his duct not being there, there wasn’t anything to push through and was backing up and coming out his small duct. His ducts still do not close and bacteria free flows.”

A liver transplant is a definitive treatment for those with BA and the survival rate after surgery has increased over the years. Infants with BA are more likely to need a liver transplant. The extent of damage to the liver prior to the transplant determines how soon an infant would need the transplant.

“He’s eventually going to have to have a transplant,” said Cravens. “The goal is to get him to 3 years old before he has to have one. And, the other day at his appointment, the doctors were looking for bile lakes. If those small ducts close off completely, what will happen is the bile will start pulling in the abdomen which would mean he would immediately go on a transplant list.”

Kasen currently takes multiple medications daily and requires specialy ordered formulas to help break down milk and proteins to be easily digested.

 “Kasen has been out of the hospital for a little over a month now,” said Creed. “This is the longest he’s gone. Before, he was going every other week.”

 Trouble viewing this gallery on your device? Click here for photos.

In August, Craves started a Facebook page solely dedicated to Kasen where people can follow his updates and send donations and prayers. A lot of Kasen’s medications are not covered on his insurance and must come out of pocket, which gets very expensive for his family.

The family relies a lot on donations to pay for these medications and to help pay for gas to and from Vanderbilt and parking. Frequently Kasen is hopsitalized for up to 10 days following a doctor's appointment.

Kasen's next scheduled appointment is Dec. 31.

For more information and updates on Kasen, visit https://www.facebook.com/kasenskrusade. Anyone interested in making a donation, may send checks to: Kasen Creed, c/o Planters Bank, P. O. Box 1570, Hopkinsville, KY, 42241-1570 or at any Planters Bank locations.

Amber Averitt
SurfKY News
Photos by Cathy Bush Cravens and Taylor Creed

© Copyright 2014 SurfKY News Group, Inc. All rights reserved. This material may not be published, broadcast, or rewritten without permission. SurfKY News encourages you to share this story by using one of the social media links below.

Posted on 2/2/14

Latest Video

Genovese - http://www.mchky.org/staff/bio.php?doc_id=35646&sub= Lewis - http://www.mchky.org/getpage.php?name=bracken_lewis Holt - http://www.mchky.org/getpage.php?name=drholt Napier - http://www.mchky.org/getpage.php?name=dr.napier_page Newman - http://www.mchky.org/staff/bio.php?doc_id=50353
Genovese - http://www.mchky.org/staff/bio.php?doc_id=35646&sub= Lewis - http://www.mchky.org/getpage.php?name=bracken_lewis Holt - http://www.mchky.org/getpage.php?name=drholt Napier - http://www.mchky.org/getpage.php?name=dr.napier_page Newman - http://www.mchky.org/staff/bio.php?doc_id=50353
2/6/2014 - posted
3/13 - 16
Started 11/8/2013
Started 11/8/2013

Stock Report

1 DOW 17,118.29
-54.39 (-0.32%)    
2 S&P 1,989.94
-4.35 (-0.22%)    
3 NASDAQ 4,524.58
-3.11 (-0.07%)    
Genovese - http://www.mchky.org/staff/bio.php?doc_id=35646&sub= Lewis - http://www.mchky.org/getpage.php?name=bracken_lewis Holt - http://www.mchky.org/getpage.php?name=drholt Napier - http://www.mchky.org/getpage.php?name=dr.napier_page Newman - http://www.mchky.org/staff/bio.php?doc_id=50353
Genovese - http://www.mchky.org/staff/bio.php?doc_id=35646&sub= Lewis - http://www.mchky.org/getpage.php?name=bracken_lewis Holt - http://www.mchky.org/getpage.php?name=drholt Napier - http://www.mchky.org/getpage.php?name=dr.napier_page Newman - http://www.mchky.org/staff/bio.php?doc_id=50353
2/6/2014 - posted
3/13 - 16
Started 11/8/2013
Started 11/8/2013
Genovese - http://www.mchky.org/staff/bio.php?doc_id=35646&sub= Lewis - http://www.mchky.org/getpage.php?name=bracken_lewis Holt - http://www.mchky.org/getpage.php?name=drholt Napier - http://www.mchky.org/getpage.php?name=dr.napier_page Newman - http://www.mchky.org/staff/bio.php?doc_id=50353
Genovese - http://www.mchky.org/staff/bio.php?doc_id=35646&sub= Lewis - http://www.mchky.org/getpage.php?name=bracken_lewis Holt - http://www.mchky.org/getpage.php?name=drholt Napier - http://www.mchky.org/getpage.php?name=dr.napier_page Newman - http://www.mchky.org/staff/bio.php?doc_id=50353
2/6/2014 - posted
3/13 - 16
Started 11/8/2013
Started 11/8/2013
Genovese - http://www.mchky.org/staff/bio.php?doc_id=35646&sub= Lewis - http://www.mchky.org/getpage.php?name=bracken_lewis Holt - http://www.mchky.org/getpage.php?name=drholt Napier - http://www.mchky.org/getpage.php?name=dr.napier_page Newman - http://www.mchky.org/staff/bio.php?doc_id=50353
Genovese - http://www.mchky.org/staff/bio.php?doc_id=35646&sub= Lewis - http://www.mchky.org/getpage.php?name=bracken_lewis Holt - http://www.mchky.org/getpage.php?name=drholt Napier - http://www.mchky.org/getpage.php?name=dr.napier_page Newman - http://www.mchky.org/staff/bio.php?doc_id=50353
2/6/2014 - posted
3/13 - 16
Started 11/8/2013
Started 11/8/2013

Most Read This Week (Site-Wide)

September 19, 2014 4853

Madisonville Man Among Three Arrested for…

in Top Stories by Muhlenberg Sheriff Curtis McGehee
September 20, 2014 3738

Large Cache of Drugs, Cash, Gun Seized;…

in Top Stories by MCSO PIO Alex Piper
September 19, 2014 2879

Five Injured in Two-Vehicle Collision at…

in Top Stories by MPD Officer Russell Nichols
September 22, 2014 2595

Medical Emergency Ends in Drug Arrest at…

in News by Madisonville Police Department
September 19, 2014 2520

Focus on Hopkins County: Crossfire

in News by Focus on Hopkins County

Most Read Stories from Hopkins County

September 19, 2014 2879

Five Injured in Two-Vehicle Collision at…

in Top Stories by MPD Officer Russell Nichols
September 22, 2014 1866

Man Arrested for Slashing Tires

in Top Stories by Madisonville Police Department
September 22, 2014 1629

Man Strikes Tree, Arrested for DUI,…

in Top Stories by Madisonville Police Department
September 19, 2014 1522

My Kentucky Roads - Twin Maples Farm in…

in Top Stories by Amber Averitt, SurfKY News
September 20, 2014 1218

Teams Race to Benefit Hopkins County…

in Top Stories by Ami Clayton, SurfKY News

Most Read Stories from Owensboro

September 20, 2014 1151

Man Charged with Theft After KSP…

in Top Stories by Alexis McGee
September 19, 2014 922

STREET CLOSINGS FOR MONDAY, SEPTEMBER 22

in Top Stories by Abby Shelton
September 19, 2014 906

Police Searching for Hit-And-Run Driver

in Top Stories by Jennifer Smith, DCSO
September 22, 2014 476

Buffalo Paint Out Brings Regional Artists…

in Top Stories by Owensboro Museum of Fine Art
September 19, 2014 410

Owensboro Museum of Fine Art News

in Top Stories by Owensboro Museum of Fine Art

Most Read Stories from Muhlenberg County

September 20, 2014 3738

Large Cache of Drugs, Cash, Gun Seized;…

in Top Stories by MCSO PIO Alex Piper
September 20, 2014 1806

Paradise NRA Banquet Promises Food, Fun,…

in Top Stories by Paul McRee, SurfKY News
September 22, 2014 1766

Third Suspect Charged in Greenville Home…

in Top Stories by MCITF PIO Wes Miller
September 22, 2014 1139

Muhlenberg Bass Team Members Score…

in Top Stories by Paul McRee, SurfKY News
September 22, 2014 1104

Hundreds Turn Out for Greenville Festival

in Top Stories by Charles W. Riley II, SurfKY News

SurfKY News Group, Inc. Central Office & Printing Division
1125 Nebo Rd.  •  Madisonville, KY 42431  •  270.452.2249 (fax)
Main Number: 270.452.2727 (phone)  •  Printing Division Direct Line: 270.821.8600 (phone)


Contact a member of our staff: www.surfky.com/contact
Copyright © 2014 SurfKY News Group, Inc.  •  Terms of Use  •  Site Map

social 03social 04social 22social 21social 06