Pick Your Community: | Hopkins | Muhlenberg | Daviess | Christian | Fayette | Henderson | Lakes | McCracken | Warren | Webster
Davis Motor Sales banner ad

Kasen’s Krusade: Family Seeking Help with Baby's Medical Expenses

kasen 300CADIZ, Ky. (11/29/13) – Kasen Paul Creed is a 5-month-old boy, who was born with a small nonfunctioning gall bladder and was diagnosed with a rare liver disease called Biliary Atresia.

BA, is a life-threatening condition in infants in which bile ducts inside or outside the liver do not have normal openings.

“He was 4 days old when I noticed something with his eyes and he looked as yellow as a bottle of mustard,” said Taylor Creed, mother of Kasen. “I felt like something was wrong but nobody believed me. Everyone kept telling me everything was normal and by looking at him, he looks like a healthy little boy.”

After Kasen turned 7 weeks, his family really began to notice some serious behaviors that didn’t seem normal for a baby his age. BA causes liver damage, scarring, loss of liver tissue and cirrhosis.

“He was sleeping more than a normal baby should. He wasn’t being active during the times he should have been either. He would eat and go right back to sleep,” said Creed. “So, I took him to the doctor. When Dr. Foster got the results back, she noticed that his salt, protein and liver enzymes sky had rocketed. So, she sent me to Vanderbilt in Nashville.”

When the emergency room doctors at Vanderbilt did further testing, they found out during an ultrasound that he did not have a functioning gall bladder and required surgery. At 58 days old, Kasen underwent a procedure called Kasai.

“When he went in for his surgery, they took out the piece of gall bladder and split one of his intestines and hooked it to his liver so bile had a place to drain instead of floating around in his belly,” said Creed. “We are waiting now to see if his surgery worked.”

Normally, patients who have BA have up to three or four Cholangitis infections within their first year, but spread out, not back to back like Kasen has undergone.

 “After they did another ultra sound, they found he had Cholangitis for the fourth time,” said Creed. “So, then they decided to increase his Cipro antibiotic in hopes it would help get rid of the infection.”

The first major sign of Biliary Atresia includes jaundice – where both skin and whites of eyes turn yellow. Jaundice occurs when the liver isn’t able to remove the bilirubin and instead is absorbed by the liver, then processed and released into bile. Then the blockage of the bile ducts forces bilirubin to build up in the blood. Other signs include dark urine, gray or white stools, and slow weight gain and growth.

“When you have a normal liver, it has a duct at the end where it closes,” said Cathy Bush Cravens, Kasen's grandmother. “When the bile pushes through, once it goes into the gall bladder and the intestines, the duct closes off so no bacterium enters the liver. So, with his duct not being there, there wasn’t anything to push through and was backing up and coming out his small duct. His ducts still do not close and bacteria free flows.”

A liver transplant is a definitive treatment for those with BA and the survival rate after surgery has increased over the years. Infants with BA are more likely to need a liver transplant. The extent of damage to the liver prior to the transplant determines how soon an infant would need the transplant.

“He’s eventually going to have to have a transplant,” said Cravens. “The goal is to get him to 3 years old before he has to have one. And, the other day at his appointment, the doctors were looking for bile lakes. If those small ducts close off completely, what will happen is the bile will start pulling in the abdomen which would mean he would immediately go on a transplant list.”

Kasen currently takes multiple medications daily and requires specialy ordered formulas to help break down milk and proteins to be easily digested.

 “Kasen has been out of the hospital for a little over a month now,” said Creed. “This is the longest he’s gone. Before, he was going every other week.”

 Trouble viewing this gallery on your device? Click here for photos.

In August, Craves started a Facebook page solely dedicated to Kasen where people can follow his updates and send donations and prayers. A lot of Kasen’s medications are not covered on his insurance and must come out of pocket, which gets very expensive for his family.

The family relies a lot on donations to pay for these medications and to help pay for gas to and from Vanderbilt and parking. Frequently Kasen is hopsitalized for up to 10 days following a doctor's appointment.

Kasen's next scheduled appointment is Dec. 31.

For more information and updates on Kasen, visit https://www.facebook.com/kasenskrusade. Anyone interested in making a donation, may send checks to: Kasen Creed, c/o Planters Bank, P. O. Box 1570, Hopkinsville, KY, 42241-1570 or at any Planters Bank locations.

Amber Averitt
SurfKY News
Photos by Cathy Bush Cravens and Taylor Creed

© Copyright 2014 SurfKY News Group, Inc. All rights reserved. This material may not be published, broadcast, or rewritten without permission. SurfKY News encourages you to share this story by using one of the social media links below.

In Other News...

Two Vehicles Collide on Pennyrile Parkway

NORTONVILLE, Ky. (7/28/14) ― A juvenile passenger went to the hospital for possible injuries after the vehicle he was… Read More

Madisonville Man Arrested for Assault, Unlawful Imprisonment

MADISONVILLE, Ky. (7/28/14) — Madisonville Police were dispatched to a Whittington Drive residence in reference to a… Read More

Most Read This Week (Site-Wide)

July 24, 2014 3887

Powderly Man Injured in Apparent Gun…

in Top Stories by Charles W. Riley II, SurfKY News
July 24, 2014 2800

Madisonville Man Charged for Drugs,…

in Top Stories by Trooper Stu Recke
July 25, 2014 2177

No One Injured in Truck-Train Collision

in Top Stories by Ami Clayton, SurfKY News
July 24, 2014 1788

Muhlenberg to Have State's Only Honey…

in Top Stories by Charles W. Riley II, SurfKY News
July 25, 2014 1431

Vehicle Strikes Lawn Mower Driven on…

in Top Stories by Dep. Mike Evans

Most Read Stories from Hopkins County

July 24, 2014 2800

Madisonville Man Charged for Drugs,…

in Top Stories by Trooper Stu Recke
July 25, 2014 2177

No One Injured in Truck-Train Collision

in Top Stories by Ami Clayton, SurfKY News
July 25, 2014 1431

Vehicle Strikes Lawn Mower Driven on…

in Top Stories by Dep. Mike Evans
July 28, 2014 1261

Madisonville Woman Arrested for Being a…

in Top Stories by Madisonville Police Department
July 28, 2014 1191

Two Injured in Vehicle Collision on…

in Top Stories by William Roundtree

Most Read Stories from Owensboro

July 24, 2014 1349

US 231 Ohio River 'William Natcher'…

in News by Keith Todd
July 24, 2014 1062

Maintenance Scheduled at Fisher Park and…

in News by Brittni Bunn
July 24, 2014 903

Portion of Spring Bank Drive Closed…

in News by Sherry Girten
July 28, 2014 542

Dont Miss Out on a Howl of a Good Time

in News by Brittni Bunn
July 28, 2014 510

Zuberer Takes Over at Quarterback for…

in News by Steve LeMaster

Most Read Stories from Muhlenberg County

July 24, 2014 3887

Powderly Man Injured in Apparent Gun…

in Top Stories by Charles W. Riley II, SurfKY News
July 24, 2014 1788

Muhlenberg to Have State's Only Honey…

in Top Stories by Charles W. Riley II, SurfKY News
July 24, 2014 1307

Marching Mustangs Band Camp Underway

in Top Stories by Charles W. Riley II, SurfKY News
July 25, 2014 1284

Business Spotlight - McQuady's Automotive

in Top Stories by Charles W. Riley II, SurfKY News
July 25, 2014 1115

Business Spotlight - Blue Moon Car Wash

in Top Stories by Charles W. Riley II, SurfKY News

SurfKY News Group, Inc. Central Office & Printing Division
1125 Nebo Rd.  •  Madisonville, KY 42431  •  270.452.2249 (fax)
Main Number: 270.452.2727 (phone)  •  Printing Division Direct Line: 270.821.8600 (phone)

SurfKY Owensboro News Bureau
920 Frederica St. / Suite 210  •  Owensboro, KY 42301  •  270.683-8060 (phone)


Contact a member of our staff: www.surfky.com/contact
Copyright © 2014 SurfKY News Group, Inc.  •  Terms of Use  •  Site Map

social 06social 21social 22social 04social 03